Sunday, May 29, 2011

A little break down and Shades of Gray

A little break down on N-Zilla...Loveable and Destructive.

About six months after N-Zilla  was born I went to my Doctor for P.P.D .  As an infant he was colicky more so then my other children but a little like Crazy Horse (9 year old Daughter).  As a younger toddler lots of things were getting broken or eaten in my house.  Lots and Lots of sleepless nights.  Tried to do the same activities I did with the older two with him, but he didn't like touching paint.  So no weekly fridge paintings.  N-Zilla was a bit more Va-Voom as Grandma Big Bear likes to say or Alie Oop Like Grandpa Big Bear likes to say. I never gave to much thought to it because for the most part little N-Zilla was overall a happy baby.

N-Zilla takes a little assessment .  Comes to our attention that N-Zilla isn't speaking as much as he's suppose to.  August 2010 N-Zilla begains Eci. Notice that N-Zilla likes trains obsessively.  Repeats words and has certain characteristics of Sensory Processing Disorder.   Flora, Fauna, and Merryweather come to the house 4 times a week.  Once for speech, once for reinforcement of speech session and interactive, and twice for behavior and parent education (how to work with your spd child and to be honest I feel that I work well with N-Zilla and I have my SPD tools, but it's nice to have someone to talk to and who isn't fazed by a kid hanging at my neck and ramming me with his head in my gut).  We just keep on talking.  It's always nice to have adult contact).

(Start a blog(s) if nothing else it would make me feel better and get some confusion of my chest and help myself, family, and friends understand N-Zilla, although I want to make it clear N-Zilla is so much more the SPD.  It isn't who he is it's just a part of our life).

  At first the blog(s) kinda made some waves with in-laws, but by making my blog(s) I was able to find lot of helpful, useful, and funny resources.  Like the  SPD Blogger Network and SPD foundation, and many other blogs of families that have sensational kids and find humor in their life.  Before this I would have never thought to search Sensory Processing Disorder on Face Book.

Getting ready to transition out of Eci and to possible pre-school.  I fill out all the paper work and set a date with the school district to see if N-Zilla qualifies for pre-school or speech therapy at the least through the school district.

(mean while Mr. S and I haven't really talked about SPD.  I sense that it makes him feel uncomfortable which makes me annoyed.  I feel more and more alienated because I know that my Loveable and Destructive son needs just a little bit more of a push.  I can't put my finger on it, But often it makes me feel helpless, confused and frustrated). 

Went to the (first) speech assessment at the school district.  I thought it went good and I was almost positive that he wasn't gong to qualify for speech therapy and preschool.  Later that week I got a phone call from Mrs. Coker saying, "Could you bring N-Zilla in, I have some concerns and would like to rule out Autism".  Wow I didn't see that coming.  Brought it up to Mr. S and it didn't go to well.

Went to second assessment.  Again I thought it went good.  It seemed all very normal to me.  A week later got a phone call to go over the points.  I'll give you the very brief answer as I was on the phone for an hour with Mr. Wagner about the results.

It seems that N-Zilla is in a gray area or Possible or At Risk.  I heard those last two phrase a lot.  He got a 88 out of 100 in the Autistic scale so that puts him at Possible for a learning disability.  I strongly feel that it is SPD.    Looks like N-Zilla will be going to preschool (I will find out next Thursday which by the way will be the first time Mr. S will be taking the little ones to the Doctors all by himself), and every year we will have a ARD about the N-Zilla.  By his 6 birthday we will have a meeting to see if he needs to continue special education or with general education.  Phew that was lot to stay.  I'm sure I'm leaving some things out, but will make for a better post later. 

Went over results with Mr. S again didn't go so well.  It really does seem that he doesn't want to know what is going on.  But I need him to be on board here.  Especially when it come to our Sensory Diet.  Even though we talked about it I don't think Mr. S is fully accepting everything that is going on.  

As funny as it sounds...I feel like we have a game plan, and that makes me feel so much better.

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